Today was another infusion day. They added back in a targeted therapy drug that works with two of the chemo drugs and he slept through quite a bit of the infusion. It seems that the new anticipatory medicine knocks him out and helps a little with side effects. Although not as sick as the treatment before last, he has been nauseous and vomiting. Hopefully, his two meds will kick in soon to alleviate it.
To set the record straight with facts - despite a rumor going around, Tim has not been given any prognosis on life span. We are unsure where this false information originated, but know it has upset the kids and we are working to alleviate their fears. We are continuing to live our life as normal as possible and have even made plans for the next year. What we have learned is not to take for granted God’s blessings. None of us are guaranteed tomorrow. Only the Lord knows the number of our days.
Friday, April 27, 2018
Sunday, April 15, 2018
The verdict is in...
This week was somewhat of a roller coaster. Cooper had a cold, Abby played in the district golf tournament, and Tim spent three days at MD for doctors’ appointments. We left at 4:30 Monday morning to get to the medical center for blood work, an MRI, and an appointment with his rectal surgeon. When we finally headed home we were both a little thrown off his surgeon recommended consulting with his oncologist and a radiation oncologist about going on preoperative radiation and chemo to see how his body responded. If he did well - meaning the cancer in the lungs didn’t grow and nothing returned in the liver - then he would be a candidate for surgery to remove the rectal tumor. However, he was very upfront that it would be a major surgery that might alter his everyday functions. We didn’t know what to think and decided to pray and wait.
We didn’t have to wait long. When he saw his medical oncologist on Thursday, he learned that all of the doctors had consulted and decided at this time going off of the chemo he is on right now is too great a risk for growth in the lungs and regrowth in the liver. So the verdict is .... he continues on chemo every other week. They will be adding back in another drug next week now that his liver incision has completely healed. Praise the Lord! For now they seem to have found a combination of anticipatory drugs that are keeping the side effects well under controlled. The biggest thing he seems to deal with is that he gets tired really easy. But we are blessed that he is able to be home and rest as he needs to.
For now we pray that his body can tolerate chemo for the long term and adjust to our new normal. We are blessed and thankful for an amazing support system and the many people who are praying with us.
We didn’t have to wait long. When he saw his medical oncologist on Thursday, he learned that all of the doctors had consulted and decided at this time going off of the chemo he is on right now is too great a risk for growth in the lungs and regrowth in the liver. So the verdict is .... he continues on chemo every other week. They will be adding back in another drug next week now that his liver incision has completely healed. Praise the Lord! For now they seem to have found a combination of anticipatory drugs that are keeping the side effects well under controlled. The biggest thing he seems to deal with is that he gets tired really easy. But we are blessed that he is able to be home and rest as he needs to.
For now we pray that his body can tolerate chemo for the long term and adjust to our new normal. We are blessed and thankful for an amazing support system and the many people who are praying with us.
Thursday, April 5, 2018
Keep On Keeping On
I know I haven't posted in a while - I just haven't really known what to say. But after several people have commented that I haven't posted in a while and asked about Tim, I decided it was time. Tim resumed chemo on Friday, March 16. I was off for Spring Break and was able to go with him. That particular infusion made him extremely sick from the very beginning. There weren't any new meds involved, but his body just didn't tolerate it well. At his next appointment with the oncologist, he was prescribed an additional medicine to try to help manage the nausea and vomiting. He can take it in advance and they give it to him through his port just before the chemo infusion, as well. It's more for sensory and neurological control, but it has really seemed to help and he didn't have any adverse effects from chemo last Friday. We did have a bump in the road last Tuesday. His incision from the liver resection has still not closed completely and he noticed tissue coming from it. After contacting his nurse, we were told to rush him to triage at the colorectal center. Once there, they discussed packing it versus a wound vac, but they ultimately just pushed it back in and put a bandage over it. At this point, he just keeps it covered and waits. They've said that being on chemo will take it longer to heal and it could take up to a year to fully close.
In the meantime, we just keep on keeping on. We were all four able to get away for one of Abby's golf tournaments in Longview a couple of weeks ago and, Tim felt good enough to serve at church on the Thursday before Easter and in the preschool department Easter Sunday. We are trying real hard to find joy in the small things and to not take anything for granted.
So what's next -
1) Right now he's scheduled for chemo through the end of May. It's the same schedule as before - infusion in clinic every other Friday and home with a pump through Sunday.
2) He has multiple appointments on Monday. We will leave the house at 4:30 a.m. for an MRI and to see the rectal surgeon where we hope to get an updated plan for surgery.
Pray that he continues to tolerate chemo and that we get a good plan going forward to remove all of the cancer form his body. The sooner the better for us.
More to come after Monday -
In the meantime, we just keep on keeping on. We were all four able to get away for one of Abby's golf tournaments in Longview a couple of weeks ago and, Tim felt good enough to serve at church on the Thursday before Easter and in the preschool department Easter Sunday. We are trying real hard to find joy in the small things and to not take anything for granted.
So what's next -
1) Right now he's scheduled for chemo through the end of May. It's the same schedule as before - infusion in clinic every other Friday and home with a pump through Sunday.
2) He has multiple appointments on Monday. We will leave the house at 4:30 a.m. for an MRI and to see the rectal surgeon where we hope to get an updated plan for surgery.
Pray that he continues to tolerate chemo and that we get a good plan going forward to remove all of the cancer form his body. The sooner the better for us.
More to come after Monday -
Friday, March 16, 2018
Chemo Round Two Starts Today
Today is exactly six weeks post liver resection and the first possible date to start chemo, so here we are checked in and awaiting drugs. This round - at least today - will be shorter than previously as they have removed two drugs while the liver and incisions continue to heal. He’ll still go home with a pump for the weekend and I’ll play nurse on Sunday. Praying that side effects are minimal.
Monday, February 26, 2018
3 Weeks Post Resection, Lung Update, and Ablation
Tim’s liver surgeon resected about 80% of his liver and removed his gallbladder on Friday, February 2. It was a long, grueling 10-hour procedure, but a dear group of friends came and spent the day with me and kept me distracted from watching the clock all day. After a long wait in PACU, a bed finally became available in extended PACU that night about 10:00. The next morning Tim was up walking and we were finally moved to a regular room late Saturday afternoon. The doctor had prepared us for a 7-10 day stay, but Tim did everything he was told and we broke free on Tuesday morning after only four days.
After returning home, we found that energy and appetite have been almost non existent, but he has pushed through and has been walking almost two miles a day. He’s returned for two follow up visits and the doctor appears to be astonished at how well he’s recovering.
Last week began what feels like daily trips to the medical center - not really, but it feels that way. On Monday he was scheduled for a CT scan to see how the liver is growing back and to get exact locations of the three remaining tumors in the liver. On Wednesday, we had a consultation with the lung surgeon. He said, “I see nothing to be concerned about, and don’t take this the wrong way, but I hope I never see you again.” He reassured us that they would continue to monitor and if anything came up, he would have a plan. Praise God! We needed some good news.
We returned Friday for a pre-op for an ablation if the three remaining tumors. After the weekend enjoying Cooper’s last basketball game and church on Sunday, we left home early this morning for the 4th time in 7 days to check in for the ablation at 7:00 this morning. Basically, the radiologist used a CT to guide long probes into the liver and microwaves “burned” or ablated the tumors. We expected to be in recovery 3 hours post procedure, but Tim’s body did not handle the procedure well. He suffered severe pain and vomiting so the decision was made to admit him. We were moved to a room about 4:00 this afternoon and he’s been resting well. The good news in all of this is that his room is in a newer part of the building and much more comfortable than any of the others we’ve been in.
Next steps:
1. Plans are to be discharged tomorrow
2. Appointment with medical oncologist next week - praying we find out what the next treatment protocol entails and a timeline for that.
3. Appointment with colorectal surgeon early April and praying we get a timeline to get the rest of the cancer out of his body.
We’ve been fighting this 5 months and things have gone much better than we could have ever imagined. Continue to pray for Tim’s recovery and health and for the kids as they are shuffled around on any given day. We know many others are facing a much worse prognosis and we are not taking anything we are facing for granted.
After returning home, we found that energy and appetite have been almost non existent, but he has pushed through and has been walking almost two miles a day. He’s returned for two follow up visits and the doctor appears to be astonished at how well he’s recovering.
Last week began what feels like daily trips to the medical center - not really, but it feels that way. On Monday he was scheduled for a CT scan to see how the liver is growing back and to get exact locations of the three remaining tumors in the liver. On Wednesday, we had a consultation with the lung surgeon. He said, “I see nothing to be concerned about, and don’t take this the wrong way, but I hope I never see you again.” He reassured us that they would continue to monitor and if anything came up, he would have a plan. Praise God! We needed some good news.
We returned Friday for a pre-op for an ablation if the three remaining tumors. After the weekend enjoying Cooper’s last basketball game and church on Sunday, we left home early this morning for the 4th time in 7 days to check in for the ablation at 7:00 this morning. Basically, the radiologist used a CT to guide long probes into the liver and microwaves “burned” or ablated the tumors. We expected to be in recovery 3 hours post procedure, but Tim’s body did not handle the procedure well. He suffered severe pain and vomiting so the decision was made to admit him. We were moved to a room about 4:00 this afternoon and he’s been resting well. The good news in all of this is that his room is in a newer part of the building and much more comfortable than any of the others we’ve been in.
Next steps:
1. Plans are to be discharged tomorrow
2. Appointment with medical oncologist next week - praying we find out what the next treatment protocol entails and a timeline for that.
3. Appointment with colorectal surgeon early April and praying we get a timeline to get the rest of the cancer out of his body.
We’ve been fighting this 5 months and things have gone much better than we could have ever imagined. Continue to pray for Tim’s recovery and health and for the kids as they are shuffled around on any given day. We know many others are facing a much worse prognosis and we are not taking anything we are facing for granted.
Friday, February 2, 2018
Gallbladder and Most of Liver are Gone
It’s 8:30 pm and I’m sitting in PACU waiting for a room in extended recovery as Tim dozes in and out. We checked in this morning at 5:15 and they took him back for surgery just before 7:00. The surgery lasted right at 10 hours. Dr. Chun said it went well when she came to see me about 5:00. I am blessed by wonderful friends as they provided plenty of entertainment to distract me in between the updates every two hours. He’s resting fairly well but know the days ahead are will bring ups and downs.
Thursday, February 1, 2018
Preparing for Liver Resection
We arrived at MD Anderson this morning for Anesthesia Assessment and a PreOp appointment with the surgeon. Everything went smoothly in anesthesia and we were left with almost four hours until the afternoon appointment.
Tim and I ventured over to the McGovern Commons for lunch outside. It only took us one new elevator, but Tim said he felt like we’d been on six. After lunch we rode up to the observation deck on the 24th floor. You can see all of the medical center, the ship channel, and back over to NRG on the side we were on. From our chairs, all you could see were blue skies and clouds. It’s supposed to be a quiet place, but others must not have realized that or cared. Nonetheless, we spent several hours reading and relaxing.
This afternoon, we met with Dr. Chun’s fellow who will be in the OR tomorrow morning and she explained that Tim’s case is one of the trickier ones. When I asked to confirm the six- to eighth- hour length of surgery, she responded with “at least.” She also explained that he will likely need a blood transfusion and explained the two possibilities for pain management. Dr. Chun and the anesthesiologist have already discussed that he will like have an epidural rather than tap blocks and they would get him up to walk on Saturday.
Basically, the most disappointing news was when the nurse’s aid said that he is on clear liquids from this point forward. Too bad we didn’t have a good lunch. But then Dr. Chun came in and said he could eat a light supper. We already knew we liked her, but he sure liked her more with that.
In all seriousness, we both really like her and have confidence in God’s work through her. Her bedside manner is excellent, as was her fellow’s.
We are now off to the Rotary House to attempt to get some much needed rest. I know it’s going to be a long few days.
Tim and I ventured over to the McGovern Commons for lunch outside. It only took us one new elevator, but Tim said he felt like we’d been on six. After lunch we rode up to the observation deck on the 24th floor. You can see all of the medical center, the ship channel, and back over to NRG on the side we were on. From our chairs, all you could see were blue skies and clouds. It’s supposed to be a quiet place, but others must not have realized that or cared. Nonetheless, we spent several hours reading and relaxing.
This afternoon, we met with Dr. Chun’s fellow who will be in the OR tomorrow morning and she explained that Tim’s case is one of the trickier ones. When I asked to confirm the six- to eighth- hour length of surgery, she responded with “at least.” She also explained that he will likely need a blood transfusion and explained the two possibilities for pain management. Dr. Chun and the anesthesiologist have already discussed that he will like have an epidural rather than tap blocks and they would get him up to walk on Saturday.
Basically, the most disappointing news was when the nurse’s aid said that he is on clear liquids from this point forward. Too bad we didn’t have a good lunch. But then Dr. Chun came in and said he could eat a light supper. We already knew we liked her, but he sure liked her more with that.
In all seriousness, we both really like her and have confidence in God’s work through her. Her bedside manner is excellent, as was her fellow’s.
We are now off to the Rotary House to attempt to get some much needed rest. I know it’s going to be a long few days.
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