What day is it?

Day 4 is all we know.  Neither of us knew the date or the day of the week when we woke up this morning.  I finally wrote it on the board.  It also dawned on us that we will “gain an hour” tomorrow night. Not real sure what to think about that.  You’ll understand more in a bit.

Discharge Date is Blank 😢

After a VERY LONG night, doctors made rounds early this morning.  We were up 8 times between 10pm and 6am. That’s 8 times in 8 hours!! I was dead on my feet! The way I calculated it is that if we gain an hour, that’s one more time we have to be up in the night, not one more hour of sleep. 😩

The primary care team feels his elevated WBC is related to the cancer as he has no other signs of infection.  They were clear that the goal to go home is still to get his numbers up - most importantly his RBC and his sodium.

Nephrology has put him on a limited fluid intake in an effort to keep from flushing any sodium and ordered an MRI of his brain for late this evening to see if there is anything they can see that might be causing the low sodium count.  (My math above is the liquid he has ingested today so far.)

As far as the RBC, he is currently getting a blood transfusion.  

Mel, Tim, and his new blood. 

Regardless of the length of time we’ve been here or will be here, we know we are blessed and are thankful for so many things.  We’ve had excellent care from his nurses (Mel above has been his day nurse these last few days), PCPs, doctors, and his case manager who has set up his oxygen at home already.  We have a really nice big room that is comfortable for both of us.  We are thankful for our friends who continue to check on us and pray for and with us. Our families have done everything we’ve needed and asked.  (My brother is coming to stay tonight so that I can go home and SLEEP 💤 and spend time with the kids. I told Tim that Andy better get the full experience of being up every hour!). Our kids have been real troopers through all of this. The Lord has blessed us by allowing us to be their parents.